Last week we learned that our insurance had changed and that Cameron is only allowed 20 therapy visits per year. Cameron meets that in a single month so obviously we have had to cancel all therapy until we find a solution. We have always been turned down by government programs in the past but I am reapplying. It's all we know to do. We cannot afford to pay out of pocket for therapy so we are hoping to find help. Cameron will require therapy throughout all of his life and it is so important for him.
Also, last week we met with Brian from Care Source (awesome service!) and were talking about getting Cameron a bathing system for the tub. He has outgrown his baby seat now that he is a whopping 32lbs and he still requires support in the bath. We picked out the best one suited for Cameron's needs and then found out a few days later that the bath chair is not covered by our benefits either even if he needs it for medical reasons. Cameron also needs new leg braces because he has outgrown his first pair. Both of these things are very expensive as I'm sure you know. Everything for special needs children is.
We are wanting to do some fundraisers to raise money for these items and for Cameron's care as well as overnight trips to Houston for his doctor visits. His latest blood work is costing us over $3000 that we are on a payment plan for.
I don't mean for this to be all about money, but unfortunately that is our main problem lately. If you have any ideas for fundraisers or would like to help us get something started please comment below or contact me by email or Facebook. All help is greatly appreciated!
*right now we are having an Avon fundraiser!
Check it out here: http://shop.avon.com/shop/default.aspx?newdept=&s=Fund&c=repPWP&otc=201120&bnd=&setlang=1&ym_mid=&ym_rid=
Just be sure you have Cameron's event selected!
Showing posts with label fundraiser. Show all posts
Showing posts with label fundraiser. Show all posts
Tuesday, September 20, 2011
Wednesday, April 27, 2011
Friday, April 8, 2011
Prayer Request
Please say a prayer for our family. We are attempting to get into a program called MDCP to help with Cameron's medical and they keep discouraging us and telling us basically that he doesn't have enough problems as if a progressive brain disease is a barrel of fun. If we could get into this program it would pay for almost ALL of his medical needs and much more.
We are about to go for a new round of tests in the next two weeks and he is also about to get measured for his leg braces. We are so excited for these things to happen, but it will cost about 3700.00 out of pocket for us and that is not counting our portion of Cameron's walker or his speech therapy that is $120 per week. Please pray that we have a financial breakthrough soon so that we can meet all of Cameron's needs. If you have any fundraiser ideas please leave a comment below or email me. I am going to try to make some more suckers soon so that we can sell some more. We had so many wonderful friends help us with that! Thank you to everyone who bought and sold! :)
Cameron is doing so well right now. He is finally getting over the croup from a week ago and becoming his happy self again. We got his new walker this week and it is so great! Cameron does wonderfully in it and seems to be really comfortable. It makes us so happy to see him get the things he needs to thrive. We have really enjoyed being outdoors the last few days. The boys love to jump on the trampoline and swing together in the backyard. Cameron just giggles at everything his big brother Caden does. They are best friends and I love it!
Cameron also started utilizing the sign for 'more'. He is using it all on his own now without being prompted to say it. It gives me a huge grin every time he does it! We are practicing new signs to try and teach him, but he has a hard time isolating fingers so I think it will take quite a bit of time. Caden is even learning some sign and I love to listen to him trying to teach Cameron.
We are about to go for a new round of tests in the next two weeks and he is also about to get measured for his leg braces. We are so excited for these things to happen, but it will cost about 3700.00 out of pocket for us and that is not counting our portion of Cameron's walker or his speech therapy that is $120 per week. Please pray that we have a financial breakthrough soon so that we can meet all of Cameron's needs. If you have any fundraiser ideas please leave a comment below or email me. I am going to try to make some more suckers soon so that we can sell some more. We had so many wonderful friends help us with that! Thank you to everyone who bought and sold! :)
Cameron is doing so well right now. He is finally getting over the croup from a week ago and becoming his happy self again. We got his new walker this week and it is so great! Cameron does wonderfully in it and seems to be really comfortable. It makes us so happy to see him get the things he needs to thrive. We have really enjoyed being outdoors the last few days. The boys love to jump on the trampoline and swing together in the backyard. Cameron just giggles at everything his big brother Caden does. They are best friends and I love it!
Cameron also started utilizing the sign for 'more'. He is using it all on his own now without being prompted to say it. It gives me a huge grin every time he does it! We are practicing new signs to try and teach him, but he has a hard time isolating fingers so I think it will take quite a bit of time. Caden is even learning some sign and I love to listen to him trying to teach Cameron.
Wednesday, March 30, 2011
Time is almost up!
This month we did a fundraiser with Scentsy thanks to a sweet, sweet lady! Thanks Kemberly Cooper!
The fundraiser is almost over-TODAY IS THE LAST DAY!
Please visit the link below to get some great products and help raise money to buy Cameron's medical equipment! :)
http://kcooper.scentsy.us
BUY SCENTSY!
The fundraiser is almost over-TODAY IS THE LAST DAY!
Please visit the link below to get some great products and help raise money to buy Cameron's medical equipment! :)
http://kcooper.scentsy.us
BUY SCENTSY!
Thursday, February 3, 2011
Thank you!
I wanted to do a post to say HELLO to anyone that may be visiting Cameron's blog for the first time.
One of our family members graciously offered to help us with a fundraiser of selling suckers and we have been so excited to get started with it. I am trying to put small labels on each sucker that she makes so that anyone that gives can read more about Cameron and our family if they wish to do so. Thank you Donna for everything you are doing to make this fundraiser happen!
We are going to do our best to make the money stretch! All the money that we raise with this fundraiser combined with what others have already given is going to go towards very important things! The two main things that we are excited about are Cameron's walker and his leg braces. These things are going to help Cameron grow and develop and learn to get around on his own. Hopefully the leg braces, or AFO's, will help to correct his feet turning and other issues like that.
Here is an example of the type of gait trainer/walker we are trying to get for Cameron:
And an example of AFO leg braces:
Also, any donations made go to helping us pay for Cameron's therapy. Currently, we go to Occupational Therapy three times per week as well as Physical Therapy three times per week. We are waiting to get insurance approval and then we will also be going for Speech Therapy. Cam and I are very busy! And last but not least, donations also go to helping us pay for Cameron's medical bills. He has had many tests done and we have many more to come.
So once again, thank you so much to anyone that has given to help Cameron. We are so grateful for every gift, whether it be financial or your thoughts and prayers. We can see those prayers working in Cameron every day!
Please feel free to look around on Cameron's Journey to read more on Cameron's condition. We still have no permanent diagnoses other than that he has a white matter disease and based on the rate of progression the doctors say it is fatal. Right now we are testing for Mitochondrial Diseases and you can read more on that in past posts. Please feel free to leave any questions or comments below. We would love to hear from you!
Thank You!
One of our family members graciously offered to help us with a fundraiser of selling suckers and we have been so excited to get started with it. I am trying to put small labels on each sucker that she makes so that anyone that gives can read more about Cameron and our family if they wish to do so. Thank you Donna for everything you are doing to make this fundraiser happen!
We are going to do our best to make the money stretch! All the money that we raise with this fundraiser combined with what others have already given is going to go towards very important things! The two main things that we are excited about are Cameron's walker and his leg braces. These things are going to help Cameron grow and develop and learn to get around on his own. Hopefully the leg braces, or AFO's, will help to correct his feet turning and other issues like that.
Here is an example of the type of gait trainer/walker we are trying to get for Cameron:
And an example of AFO leg braces:
Also, any donations made go to helping us pay for Cameron's therapy. Currently, we go to Occupational Therapy three times per week as well as Physical Therapy three times per week. We are waiting to get insurance approval and then we will also be going for Speech Therapy. Cam and I are very busy! And last but not least, donations also go to helping us pay for Cameron's medical bills. He has had many tests done and we have many more to come.
So once again, thank you so much to anyone that has given to help Cameron. We are so grateful for every gift, whether it be financial or your thoughts and prayers. We can see those prayers working in Cameron every day!
 | ||
| The Jordan Family: Caden, Jessica, Cameron and Cody |
Please feel free to look around on Cameron's Journey to read more on Cameron's condition. We still have no permanent diagnoses other than that he has a white matter disease and based on the rate of progression the doctors say it is fatal. Right now we are testing for Mitochondrial Diseases and you can read more on that in past posts. Please feel free to leave any questions or comments below. We would love to hear from you!
Thank You!
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