Friday, October 15, 2010

Blood Tests

I spoke with Cameron's neurologist yesterday afternoon for quite a while. He told me that he had most of the blood test results in and that they indicated that Cameron does not have Metachromatic Leukodystrophy. Now we are waiting on the results from the test for Pelizaeus-Merzbacher. That particular test can take up to 28 days to complete.

Dr. Foster told me that we need to see an Ophthalmologist that specializes in metabolic disease so that we may be able to figure a few more things out. He also told me that the damage on Cameron's MRI is very extensive and that Cameron has almost no white matter at all. He told me that based on the spastic movements of Cameron's arms that he thinks he will begin having more difficulty eating and keeping food down soon. Dr. Foster also told me that we may never know the name of Cameron's disease. He said that these white matter diseases are very rare and difficult to diagnose.

This is all very confusing to us, but we are doing our best to maintain a normal routine for the boys. We took Cameron to our Wednesday night church service this week and we had the nicest people pray for him. We feel so blessed to have so many behind us and praying for a miracle.

2 Corinthians 4:17-18
For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal.

John 14:1-2
Do not let your hearts be troubled. Trust in God: trust also in me.


  1. Thank you for sharing - I will continue to pray for all of you as you walk this path.

  2. He is a beautiful baby. Thank you for sharing your story. You all will be in my prayers.

  3. Jessica,

    I am praying for that sweet lil' dude, you, Cody, and your entire family. My heart is so heavy & consumed by your story...which forces me to pray constantly for you guys.

    Proverbs 31:27-29 :: 27 She watches over the affairs of her household
    and does not eat the bread of idleness.
    28 Her children arise and call her blessed;
    her husband also, and he praises her:
    29 "Many women do noble things,
    ... but you surpass them all."